What the future will hold....

What the future will hold

You know the happiness you feel when you hear "great news"; just like if I won the lottery or something like that. Today my daughter's ESY program called me (I am not going to lie I panicked because I thought she was acting out or had a meltdown in school). The teacher noticed my voice and he knows me for months; all the teachers and assistant aides know me which I love because I want to hear their feedback on how things are or what happened with my daughter. Well, long story short... he told me what I have done with my daughter that she is using more words now and she can express herself more than a month and a half ago.

I told him that she is going to private speech therapy and she is of course going to start with a new company ABA services because I just felt the other company wasn't doing their job. The behavioral specialist for the summer who is working with my daughter and other kids told me, she can go to the district school and be in an autistic school classroom and not where she was before.

You can't imagine how happy and content that made me feel. I have read the internet, doing gluten-free, low sugar, 5% on Gluten Free cookies per week. I have read everything and am not doing medications at all on her; only strict vitamins and her vitamin D that she is low on.

Her pediatrician tested her to see if she has gluten in her system and he said that; I am doing a good job because there is no gluten at all in her body by her blood work.

If it works for my daughter I would do the impossible so I can make her future a better one; my goal is for her to communicate more with people and be able to be understood. I don't expect miracles I just expect little steps and then we will see what the future holds.

I am not the mother of the year, but I try my best to make her better in any way. She has so much love and is affectionate to me and her siblings. She does have her mood swings, but that I was told my her teacher that it's a puberty thing and a girl mood swing; not the autism.

I go every week to her speech therapy and feel joy inside when I hear from afar that she says more words and tries to make her self understood. That is what I know that I am doing the best I can.

Removing things and starting from scratch

Decided to remove medications from my daughter and turning completely to biomedical and vitamins for my child & remain still her gluten-free diet. 

I did decide to remove too much sugar: low sugar apple juice and junk food which are gluten-free that may contain too much sugar that might alter her moods. 

These weeks are not going to be easy but it something that I decided to do for my child. 

Prohibit foods: 

- Gluten foods

- High levels of sugar in any type of juice

- Too much things that contain carbs

- Highly salted popcorn and once a month Cheetos; the original one that is gluten free

Currently giving my child: Omega, Pure minerals, vitamin D, Magnesium Calcium, Gaba, Vitamins that contain no chemicals , folinic acid and temporarily her MB12 injection every other day. 

It is something that I am going to try and see how it goes and if it does not work; I will reconsider the vitamin part, but still will keep the gluten free part because I know that makes my daughter better. 

 

Updates, probiotics and info on gluten on lipsticks...

 

It has been a long time since I haven't posted any blogs on my daughter's progress. Angelina continues on "Gluten-Free" diet and with her Methyl B12 injections given every 2 days in her buttocks. Last week, we went with my daughter to her biomedical doctor Dr. Patrick Elliott in Philadelphia. I was so glad to hear from him that he has seen so much progress from my daughter and he asked me several questions (kind of a test but knowledge check in his part), it came out that my daughter's autism has reduced significantly. I know there is no cure for autism, which I am aware of and this is not a disease in no way or shape.

 

What the doctor did "ADD" for her to take was VSL #3 Probiotic vitamins (that have to be refrigerated all the time), which are natural and gluten-free. Of course she continues with her Methyl B12 injections every 2 days, before it was every 3 days but now he wanted to increase the intake.

 

 

My daughter is not celiac in any way, but has extreme gluten sensitivity when she consumes gluten in any way. We all learned it here the good and bad way and even her school is aware of it. What I love about the schools are that if you do make them aware of their allergy to gluten, they can provide gluten-free lunch (you do have to provide a doctor's note when you do this).

 

There are a lot of gluten-free products everywhere now which make life easier for me and everyone who is allergic or celiac. When we go outside I am not that worried if it will be uncomfortable to hide things from her. I do wish a lot of other places do include gluten-free food, I guess it is still a work in progress throughout the years.

 

I am not going to lie, until now I still read labels and have my bookmarks from websites to help me. What I did actually discover from my neighbor is that there are a lot of lipstick products that contain "Gluten" and that was shocking because it adds more to my list now.

 

http://celiacdisease.about.com/od/GlutenFreePersonalCareProducts/fl/Gluten-Free-Makeup-Brands.htm

 

I have included above a website on information on gluten-free lipsticks.

 

I also am including below a website that talks about Probiotics as well.

 

http://www.autism-help.org/intervention-biomedical-probiotic.htm

 

This week I will be blogging more. I know that everything that I am doing with my daughter, there is no evidence that it helps her autism but so far it has helped me as a parent and that I am happy and glad so I just go for it and continue. 

"El Dia de Felicidad de una Madre" (Spanish Version)

 

¿Qué significa ser una mamá de una hija de "necesidades especiales" ...

 

 

     Desde que mi hija fue diagnosticada con autismo hace varios años, pasé por varias etapas "pensar que no era cierto, tristeza y luego el modo de acción". Mi hija Angelina tiene autismo y yo lo sé y lo acepto, pero sentí que tenía que probar varias cosas para ayudar a mi hija. Como pueden leer mis posts anteriores he intentado varias cosas, pero al final he intentado "medicina alternativa". Creo en mi corazón que era la mejor decisión que he tomado con Angelina. No es algo que "el seguro médico" cubre, por lo que en realidad tengo que gastar de mi bolsillo, pero valio la pena porque mi hija ha progresado mucho. No estoy diciendo que ella esta 100% perfectamente bien, porque nunca hay un 100% en la vida. Si usteds ven mi hija ahora y comparar cómo era antes, puedo decir honestamente que para mí es una gran diferencia.

 

      Angelina está con "Medicina Alternativa", en la que ella está completamente "libre de gluten", también acompañando de su "Terapia de Comportamiento Aplicado Análisis" (Terapia ABA), además de la terapia del habla privada y terapia del habla y terapia ocupacional en la escuela también. Una gran cantidad de personas y cosas juegan un factor en el progreso de mi hija, pero desde que ella ha sido totalmente no comiendo nada de gluten (que es la levadura y harina), su comportamiento ha cambiado y también a cambiado muchas cosas con ella. Con su "Doctor de Medicina Alternativa", como muchos llaman "DAN Doctor", también le estoy dando sus vitaminas también.

 

       Todo esto es lo que estoy pasando con mi hija y sé que es un proceso que no se progresa en un dia nada mas.

 

      Pero, hoy día cuando llegué a casa y me fui a mi habitación, mi hija Angelina dejo en mi almohada un sobre que ella hizo que decía "Angelina" con un corazón en el centro, y "mamá", si usteds ven la imagen que dibujó es una cinta amarilla en el medio y se ve como un regalo. Cuando lo abrí, ella tenía otro papel doblado en el interior con una imagen de SpongeBob y todos los personajes de los dibujos animados de ese personaje.

 

      Al ver esto me hizo reír con una gran sonrisa en mi cara y tan orgullosa como madre. Tan orgullosa porque puedo ver que mi hija está progresando mucho y eso complete mi día y queria que todos lo vean.

 

      Ahora Angelina incluso me pide que le lea cuentos antes de dormir, pero al final ella lo lee y le ayudo con algunas palabras que no entiende. "Ella puede leer"!

 

     Eso me hace muy feliz y se que es un proceso que lo tengo que tomar "dia por dia" de Angelina, pero me siento muy orgullosa de verla hacer todas estas cosas positivas. Simplemente me hace muy orgullosa y muy feliz, completa mi mundo.

 

     Yo amo a todos mis tres hijos en igualmente, pero quiero expresar mi felicidad con Angelina porque ella es una niña con "autismo", y sólo viendo su progreso me hace tan feliz. Es la misma felicidad si veo a mis dos hijos hombrecitos, Jean-Pierre y Philippe progresar en sus colegios o en sus vidas.