Almost first week on her biomedical treatments

I totally refuse to listen to the school or any hospital to tell me that my daughter needs to be on medication. It works in the beginning, but then it has bad side effects and makes her autism worse and it makes me as a mom question : Why did I do this to my child?

I have started on giving her the vitamins from her DAN doctor and mb12 injections; it is a lot to give her but they are good for her and I totally stopped temporarly the apple juice and no junk food. I am 80 percent dairy free but I am getting there.

It has been difficult for my child because she is the one that has this diagnosis, but then again it has been difficult and tough on me that I am her mother and it makes me sad and have a lot of anxiety watching my daughter struggle.

She is calm now and it has been like 4 days with this, I see her less stressed and very calm which is great for me. I did take her yesterday to the chiropractic to have her adjusted which I am going to be taking her 3 times per week after I finish working.

Let's see how the week goes with my daughter and my goal is not perfection but just better. 

Removing things and starting from scratch

Decided to remove medications from my daughter and turning completely to biomedical and vitamins for my child & remain still her gluten-free diet. 

I did decide to remove too much sugar: low sugar apple juice and junk food which are gluten-free that may contain too much sugar that might alter her moods. 

These weeks are not going to be easy but it something that I decided to do for my child. 

Prohibit foods: 

- Gluten foods

- High levels of sugar in any type of juice

- Too much things that contain carbs

- Highly salted popcorn and once a month Cheetos; the original one that is gluten free

Currently giving my child: Omega, Pure minerals, vitamin D, Magnesium Calcium, Gaba, Vitamins that contain no chemicals , folinic acid and temporarily her MB12 injection every other day. 

It is something that I am going to try and see how it goes and if it does not work; I will reconsider the vitamin part, but still will keep the gluten free part because I know that makes my daughter better. 

 

Updates, probiotics and info on gluten on lipsticks...

 

It has been a long time since I haven't posted any blogs on my daughter's progress. Angelina continues on "Gluten-Free" diet and with her Methyl B12 injections given every 2 days in her buttocks. Last week, we went with my daughter to her biomedical doctor Dr. Patrick Elliott in Philadelphia. I was so glad to hear from him that he has seen so much progress from my daughter and he asked me several questions (kind of a test but knowledge check in his part), it came out that my daughter's autism has reduced significantly. I know there is no cure for autism, which I am aware of and this is not a disease in no way or shape.

 

What the doctor did "ADD" for her to take was VSL #3 Probiotic vitamins (that have to be refrigerated all the time), which are natural and gluten-free. Of course she continues with her Methyl B12 injections every 2 days, before it was every 3 days but now he wanted to increase the intake.

 

 

My daughter is not celiac in any way, but has extreme gluten sensitivity when she consumes gluten in any way. We all learned it here the good and bad way and even her school is aware of it. What I love about the schools are that if you do make them aware of their allergy to gluten, they can provide gluten-free lunch (you do have to provide a doctor's note when you do this).

 

There are a lot of gluten-free products everywhere now which make life easier for me and everyone who is allergic or celiac. When we go outside I am not that worried if it will be uncomfortable to hide things from her. I do wish a lot of other places do include gluten-free food, I guess it is still a work in progress throughout the years.

 

I am not going to lie, until now I still read labels and have my bookmarks from websites to help me. What I did actually discover from my neighbor is that there are a lot of lipstick products that contain "Gluten" and that was shocking because it adds more to my list now.

 

http://celiacdisease.about.com/od/GlutenFreePersonalCareProducts/fl/Gluten-Free-Makeup-Brands.htm

 

I have included above a website on information on gluten-free lipsticks.

 

I also am including below a website that talks about Probiotics as well.

 

http://www.autism-help.org/intervention-biomedical-probiotic.htm

 

This week I will be blogging more. I know that everything that I am doing with my daughter, there is no evidence that it helps her autism but so far it has helped me as a parent and that I am happy and glad so I just go for it and continue. 

Our first visit to see the doctor and so very nervous I was ...

     The first visit I took my daughter was the most nerve wrecking day for me, I had a migraine and had so much tension all over my body. It was a 1 hour plus drive for me with Angelina to see the doctor, which was passing Philadelphia. Angelina was not great and had several bad episodes when we went to see the doctor. He was asking me so many questions from the beginning of my pregnancy all the way to the present on how Angelina was. At the same time, I had Angelina scream and cry which made me have a bigger migraine. The doctor told me that it was okay for him to see how she is so he can better evaluate Angelina. 

     The doctor was happy that I already started on giving Angelina no gluten (GF) foods, but told me that I had to start her on casein free food too. In order for Angelina to improve in this type of treatment, she had to eat and drink no gluten and no casein. He put her on supplements that had no dairy and no gluten, he gave me a big red book that had everything on bio medical treatments and information on  Methylcobalamin B12 injections that I would have to inject Angelina every 3rd day (which he called Hopewell pharmacy and had them ship it to me). 

     I left that day with a lot to read and left with a bigger migraine that I came in with. I was happy in a way because the doctor told me his story on how he is a parent as well with twins with autism, how his twins improved throughout the years. He gave me a print out of a newspaper article of his life and how he thanks his wife for following every single treatment with their twins. Angelina's doctor told me that everyone in my household have to adjust to this change in food because one little mistake can alter her treatments. He mentioned how important it was to have support from everyone and especially my husband in this. 

     I had to also little by little remove Angelina's medicine from the neurologist because I was starting on bio medical medicine, which is removing all toxins from Angelina in general. He send Angelina for blood work, in which I decided to take her to St. Luke's Hospital Anderson Campus to get her blood work done there. There was so many blood test that he ordered that the lady from St. Luke's Hospital was shocked to see what her doctor ordered. OMG! The lady asked me which type of doctor is this, I told the lady that this is alternative medicine. I honestly did not care what people think of what I am doing for Angelina, I know that I have her best interest in all this and would never do nothing that would put in risk her health. 

     

     I started Angelina with her treatment two days after, I wanted to be sure to read everything that the doctor gave me. That day Angelina was completely on no gluten and no casein foods, plus she was taking her supplements that the doctor gave her. The doctor gave Angelina a schedule per week what supplements I had to start her on week per week, plus give Angelina the methyl b12 injections every third day (small injection). My older son JP helped me and was very thankful to him. I read in the website of Dr. Neubrander of this cream that I think I would try so I can inject Angelina at night so she would not see it. 

      I started giving Angelina almond milk with no gluten oatmeal for breakfast and a hard boil egg. For dinner, lunch and snacks Angelina would eat her GF pasta with spinach sauce that I make, plus gluten free pizza with GF cupcakes if she wants (apples, pretzel, veggie chips, gluten free peanut butter cookies any day). Angelina doesn't really like drinking almond milk, but I sit down with her until she drinks everything or else I would take away her iPad (which she loves). 

       I was happy the day I discovered tofu ice cream sandwiches for Angelina! WOW! I thought she would not eat them because just reading "Tofu", you would think she would hate them but she loves them. Plus, I discovered gluten free cream cheese that I prepare with her pasta with spinach sauce. Thanks to Rhea that she told me all these new discoveries. 

Enjoying this !!! 

Bio medical medicine is the way I go !

     My daughter had good days and bad days, but I just felt that there was something else I can do to make them more better than worse. There was one day that Angelina got out of control with hitting and had big meltdowns, that made me evaluate everything that I did so far for my daughter. The medicines that her neurologist from "Children's Hospital of Philadelphia" were not working for her and were making her more aggressive towards everyone and cry for no reason. That week I just sat down in my bedroom and researched for a whole week other types of ways that I would be able to go about with my daughter.

     I went to a website in the internet that was called My Autism Team and spoke to several parents who had children with autism. I received great feedback from them and several parents mentioned to me about bio medical medicine, how it was helping their kids. I knew this was an option I should explore, but I had to further investigate it and talk to other parents to come up with my conclusion whether it was something I should try out with my daughter. I was not born knowing everything, but the only thing that i knew is that I wanted my daughter to get better somehow and I wasn't going to give up on her.

     That is how I researched Dr. Neubrander and how he came up with the Methylcobalamin B12 injections (MB12 injections). I saw his internet website and saw every video that he had, which were the before and after videos of every child with autism. I was surprised of what I saw and of course I knew that not every child reacts the same with the Methyl B12 injections, but I did want to pursue this direction with my daughter. I went again to the internet website "My Autism Team" and spoke to this parent that had gone to a Defeat Autism Now (DAN!) doctor in Newtown Square in Pennsylvania, which she was really happy with him because her child improved a lot. This parent mentioned that she liked this doctor because he was a parent with twins with autism. I knew this doctor was the one I should go with Angelina because he and I shared the same situation "we are parents of an autism child". 
  
      I made Angelina's first appointment with this doctor and was very anxious to see what he would tell me when he meets my daughter, his initial evaluation of Angelina. I told my family about this and had their support on this. I even spoke to my husband over the phone, but he just was not feeling the same as I was about seeing this doctor. I think he was afraid that I would have high hopes of this new treatment with our daughter and then it would turn bad in the end. I knew that this was something that is not approved with medical insurances and of course would have to pay cash to see him, but I just did not care. I absolutely do not see money as an obstacle when it comes to having my daughter be seen by a doctor that might better the way she is now. I had this maternal feeling that I should go all the way with this and hope for the best. 

     I knew that I had to change Angelina's eating habits and that I had to turn her eating to Gluten Free and Casein Free foods. This is a change that I knew would be difficult to begin with because Angelina was used to eating her donuts, cup cakes and drinking her milk. I had to turn to my friend Google and research how I can turn this into something that she would love and not something she would hate. I have to say that I love Facebook because I have my former neighbor who is vegan and just by reading her blogs and read her posts, I was able to come up with a way to turn Angelina's eating habits positive.