Showing posts with label diagnosis. Show all posts
Showing posts with label diagnosis. Show all posts

Wednesday, August 21, 2019


Ups and downs

It has been a while since I have not published anything in my Blog, but a lot of things have happened these past years. I have my daughter who has autism and more than a year ago she was diagnosed with OCD too. My daughter still remains Gluten Free for several years and everything is separated in the house to make sure there is no cross contaminated with our food and hers. She drinks Lactaid milk and not regular milk, but the only thing I still remain is on her Gluten Free life. 

I have always been a believer that I did not want to child to be on medication for no reason before more than a year ago because when she was first diagnosed with autism they told me she had also ADHD; which in the end was a misdiagnose in that point of her age and the medication that she was on made her worse than better. There are times in life you have to see what is important for your child health and when she was diagnosed with OCD; I knew that going biomedical in that portion of her life was not going to resolve her condition. The Gluten Free made her autism better as in changes and results I saw when she was GF, but with OCD it is a different condition that I decided after talking to the psychiatrist in her school and my husband and I decided it was best for her to be on medication. 

I thank my husband who is her step-father, but a big part of my kids life because for my little ones he is the only father figure that they have seen for years; I thank him because in that stage of my life I had his support; both emotional and as a mom too. I was honestly scared because I did not know what was going to happen after she was put on medication for her OCD diagnosis. 

It did work out as she lowered her OCD; I am not going to lie to you guys as in there are times she has her moments but they are less not than they were before years ago. Just today I had a situation with my daughter as in she had an episode with her OCD and it was very difficult because we always want the best for our children and want them to be better in life. Nothing is perfect in life and we just have to be strong and never give up on them. 

Just like when she was diagnosed with autism; several physicians told me she was not going to get better and that they were sorry for that, but I never gave up on my daughter and now I see the best in her. I searched the internet, found different alternatives for the autism; which I am not a doctor but I am an advocate for my child and I am not going to never just stand there and give up on her or none of my kids if they ever have anything. 

Now we are in the waiting list for her to go back to private speech therapy and hopefully she can get in before October so she has speech therapy in her school which she does already and in a private facility as well. I am not a perfect parent, but I try very much to be the best I can be and as long as they are doing great; then I know I did my job as a parent. 

I even found out a gluten free cosmetic website that sells lipsticks and foundations and also a shampoo that is Gluten Free that I currently bought for myself and my daughter now uses the shampoo, but the cosmetics not yet because she still is a teenager but when she does in years to come at least I know what things she can use. 

Thursday, July 6, 2017

"Stepping Stones for my Daughter with Autism": What the future will hold....


What the future will hold

The happiness you feel when you hear "great news"; just like if I won the lottery or the biggest prize in the world because that is what us parents feel when we hear advancements or improvements with our child life.

Sunday, June 11, 2017


Removing things and starting from scratch

Decided to remove medications from my daughter and turning completely to biomedical and vitamins for my child & remain still her gluten-free diet. 

I did decide to remove too much sugar: low sugar apple juice and junk food which are gluten-free that may contain too much sugar that might alter her moods. 

These weeks are not going to be easy but it something that I decided to do for my child. 

Prohibit foods: 
- Gluten foods
- High levels of sugar in any type of juice
- Too much things that contain carbs
- Highly salted popcorn and once a month Cheetos; the original one that is gluten free

Currently giving my child: Omega, Pure minerals, vitamin D, Magnesium Calcium, Gaba, Vitamins that contain no chemicals , folinic acid and temporarily her MB12 injection every other day. 

It is something that I am going to try and see how it goes and if it does not work; I will reconsider the vitamin part, but still will keep the gluten free part because I know that makes my daughter better. 


Saturday, June 10, 2017


Experiences and difficult stones to pass

I have passed all these years since the diagnosis of my child; thru ups and downs. It is something that as a parent that it affects you and you turn into anything that is going to help you child advance and progress in her life. I have started at first with therapy and then turned to her seeing a Neurologist in Long Island, New York to changing her to a Neurologist in Philadelphia, PA. (keep in mind I live in the Lehigh Valley in Pennsylvania so it's a long car ride for my child)

I have started with them doing head MRI's to making sure she doesn't fall into the category of having seizures; which they had to sedate her for that exam. Then in the end I turned to a Genetics doctor in The Children's Hospital of Philadelphia; making sure that there wasn't an abnormality with her. I did turn to medicine, but then gave up because it was making her worse than better. I found a biomedical doctor in Philadelphia which from there I started more than 3 years ago a Gluten-Free diet with her.

I researched what foods,medicine,things she may touch that may have gluten. You would be amaze of the stuff that contain gluten, I honestly prefer shopping for her in Wegman's because it shows me if things contain gluten or not.  Some examples are: some playdough's, soy sauce, some powder garlic, some brand name hot dogs...etc.. 

I have turned into giving my child vitamins and mb12 injections and I can honestly say these things are not cheap; they do cost money but it is well worth it for your own child who needs them. I do love especially the probiotic which is the VSL #3 which you have to keep it in the refrigerator and give once a day. 

I did find out that my daughter these months has another diagnosis to add which is OCD plus her autism. That was something that I didn't expect and it was making her life bad as in the writing and her impulses. I did turn to medication for this condition, but honestly I am trying to find a way to make her life biomedical and get rid of the chemicals and bad things in her body. 

I did talk to this person who reference me on this diet of a woman called Keri Rivera and I honestly am going to see how it goes. I am going to eliminate her sugars and have heard that there is coconut sugar which is good for you. She is 70% off dairy now, but I am trying to make it 100%. 

I try to go in the internet, talk to people in the Autism Team app in my iPhone and they also share information with me just like I share information with them. Sometime doctors turn to medicine and think it is the solution to a child's problem, but sometime it is not like that. Us as adults might take medications for conditions that we have, but we are adults. I could take medications for my fibromyalgia and my migraines, but I wouldn't want my child who has autism and OCD turn into medications if biomedical treatment would help her and eating gluten-free. 

Honestly, I can't say I have been the best of a mother because nobody is perfect, but I can say that I find a way to make my daughter get better and make her autism more lower. 

I blamed myself for my daughter having autism and I blamed myself because I thought I did something that caused this, but I am learning now that it is something that happens and you can't do anything just do the best you can and move forward. My daughter has been in her worse of days when she was first diagnosed and now even though it is not the best; it is much better.
I still remember when my daughter went to see her developmental doctor and she had a bad tantrum and went to the ground in the office waiting room and couldn't stop yelling and was in her own world. I was crying because I honestly felt I didn't know what to do for her, I felt useless as a parent and doing the job alone and her father not around to help me. I remember that there was this lady that told me: Don't worry I passed through this with my child, things look bad now but it will get better... give it time. I still remember her words and now I know it might not be perfect but I do see improvements in my child. 

I do the best I can and only expect that one day my daughter can grow up and have a normal way of living and go off to college and be the best she can be. I know there is no cure for autism, but I do know that there has to be a way to make her life better. 

Wednesday, December 4, 2013

List of "Goya Products" that don't contain gluten and others that might

Here is a list of "Goya Products" that are gluten-free and others that might contain gluten. I personally love this information because I am Hispanic and use some of these products in my household.


GLUTEN FREE
Goya Rice Flour
ingredients are gluten free but may be susceptible to cross-contamination
Goya Yuca Flour
Ingredients are gluten free but may be susceptible to cross-contamination
Goya Corn Meal
ingredients are gluten free but may be susceptible to cross-contamination
Goya Masarepa
ingredients are gluten free but may be susceptible to cross-contamination
Canned Beans & Peas
gluten free
Dry Beans, except 16 bean soup mix- has gluten (barley)
Ingredients are gluten free but may be susceptible to cross-contamination
Sazón Goya
gluten free
Seasonings
gluten free
CUBITOS-CHICKEN BOULLON
gluten free
CONSOMME-CHICKEN BOUILLION
gluten free
CUBITOS-BEEF BOUILLION
gluten free
CUBITOS-CHICKEN BOUILLION
gluten free
HAM FLAVORED CONCENTRATE
gluten free
SALAD AND VEGETABLE SEASONING



gluten free
ADOBO Goya
gluten free
SOFRITO
gluten free
ACHIOTINA (ANNATTO IN LARD)
gluten free
Spices
gluten free
FLOR DE TILO
gluten free
GROUND OREGANO
gluten free
ALL SPICE
gluten free
ANIS SEED
gluten free
WHOLE CLOVES
gluten free
WHOLE BLACK PEPPER
gluten free
GARLIC SALT
gluten free
STAR ANIS
gluten free
BAY LEAF
gluten free
STICK CINNAMON
gluten free
CHILI POWDER
gluten free
JAMAICAN CURRY POWDER
gluten free
CUMIN SEED
gluten free
GROUND CUMIN
gluten free
GARLIC POWDER
gluten free
GROUND CINNAMON
gluten free
ONION POWDER
gluten free
CAMOMILLE MANZANILLA
gluten free
CRUSHED PEPPERS
gluten free
PAPRIKA
gluten free
GROUNDBLACK PEPPER
gluten free
OREGANO LEAF 1.5 OZ
gluten free
OREGANO LEAF 2 OZ
gluten free
OREGANO LEAF 1 OZ
gluten free
GARLIC POWDER
gluten free
COMINO MOLIDO
gluten free
ONION POWDER
gluten free
BAY LEAF
gluten free
GROUND PEPPER 6 OZ
gluten free
GOYA SALT
gluten free
3 DOZEN CORN TORTILLAS
gluten free
COCONUT MILK
Gluten free
PLANTAIN CHIPS-5OZ
gluten free
PLANTAIN CHIPS-2OZ
gluten free
PLANTAIN CHIPS-LOOSE-2OZ
gluten free
PLANTAIN CHIPS-4OZ
gluten free
NO SALT PLANTAIN CHIPS
gluten free
GARLIC PLANTAIN CHIPS
gluten free
PLANTAIN STRIPS
gluten free
CREAM OF COCONUT
gluten free
GUAVA PASTE
gluten free
Cider vinegar
gluten free
CONTAIN GLUTEN
Frozen foods
Cross-contamination for gluten
Rice mixes
Cheese mixes have gluten; chicken flavored rice has wheat pasta in it; cross-contamination for all others due to machines; hydrolyzed yeast in red beans and rice
16 Bean Soup Mix
contains gluten
Flan (Ready-Made)
contains gluten
Tomato Sauce and Paste
contains gluten
FLAN (Powder)
contains gluten
FLAN WITH CARAMEL
contains gluten
RECAITO
contains gluten-has wheat flour in the ingredients


http://www.celiac.freeservers.com/Gluten%20Free%20Foods.htm

Knowledge

  Knowledge When my child was diagnosed with autism; I went thru so much anxiety and trying to look for resources on the web to see w...