Removing things and starting from scratch

Decided to remove medications from my daughter and turning completely to biomedical and vitamins for my child & remain still her gluten-free diet. 

I did decide to remove too much sugar: low sugar apple juice and junk food which are gluten-free that may contain too much sugar that might alter her moods. 

These weeks are not going to be easy but it something that I decided to do for my child. 

Prohibit foods: 

- Gluten foods

- High levels of sugar in any type of juice

- Too much things that contain carbs

- Highly salted popcorn and once a month Cheetos; the original one that is gluten free

Currently giving my child: Omega, Pure minerals, vitamin D, Magnesium Calcium, Gaba, Vitamins that contain no chemicals , folinic acid and temporarily her MB12 injection every other day. 

It is something that I am going to try and see how it goes and if it does not work; I will reconsider the vitamin part, but still will keep the gluten free part because I know that makes my daughter better. 

Experiences and difficult stones to pass

I have passed all these years since the diagnosis of my child; thru ups and downs. It is something that as a parent that it affects you and you turn into anything that is going to help you child advance and progress in her life. I have started at first with therapy and then turned to her seeing a Neurologist in Long Island, New York to changing her to a Neurologist in Philadelphia, PA. (keep in mind I live in the Lehigh Valley in Pennsylvania so it's a long car ride for my child)

I have started with them doing head MRI's to making sure she doesn't fall into the category of having seizures; which they had to sedate her for that exam. Then in the end I turned to a Genetics doctor in The Children's Hospital of Philadelphia; making sure that there wasn't an abnormality with her. I did turn to medicine, but then gave up because it was making her worse than better. I found a biomedical doctor in Philadelphia which from there I started more than 3 years ago a Gluten-Free diet with her.

I researched what foods,medicine,things she may touch that may have gluten. You would be amaze of the stuff that contain gluten, I honestly prefer shopping for her in Wegman's because it shows me if things contain gluten or not.  Some examples are: some playdough's, soy sauce, some powder garlic, some brand name hot dogs...etc.. 

I have turned into giving my child vitamins and mb12 injections and I can honestly say these things are not cheap; they do cost money but it is well worth it for your own child who needs them. I do love especially the probiotic which is the VSL #3 which you have to keep it in the refrigerator and give once a day. 

I did find out that my daughter these months has another diagnosis to add which is OCD plus her autism. That was something that I didn't expect and it was making her life bad as in the writing and her impulses. I did turn to medication for this condition, but honestly I am trying to find a way to make her life biomedical and get rid of the chemicals and bad things in her body. 

I did talk to this person who reference me on this diet of a woman called Keri Rivera and I honestly am going to see how it goes. I am going to eliminate her sugars and have heard that there is coconut sugar which is good for you. She is 70% off dairy now, but I am trying to make it 100%. 

I try to go in the internet, talk to people in the Autism Team app in my iPhone and they also share information with me just like I share information with them. Sometime doctors turn to medicine and think it is the solution to a child's problem, but sometime it is not like that. Us as adults might take medications for conditions that we have, but we are adults. I could take medications for my fibromyalgia and my migraines, but I wouldn't want my child who has autism and OCD turn into medications if biomedical treatment would help her and eating gluten-free. 

Honestly, I can't say I have been the best of a mother because nobody is perfect, but I can say that I find a way to make my daughter get better and make her autism more lower. 

I blamed myself for my daughter having autism and I blamed myself because I thought I did something that caused this, but I am learning now that it is something that happens and you can't do anything just do the best you can and move forward. My daughter has been in her worse of days when she was first diagnosed and now even though it is not the best; it is much better.

I still remember when my daughter went to see her developmental doctor and she had a bad tantrum and went to the ground in the office waiting room and couldn't stop yelling and was in her own world. I was crying because I honestly felt I didn't know what to do for her, I felt useless as a parent and doing the job alone and her father not around to help me. I remember that there was this lady that told me: Don't worry I passed through this with my child, things look bad now but it will get better... give it time. I still remember her words and now I know it might not be perfect but I do see improvements in my child. 

I do the best I can and only expect that one day my daughter can grow up and have a normal way of living and go off to college and be the best she can be. I know there is no cure for autism, but I do know that there has to be a way to make her life better. 

My daughter's way of life and my own too

My daughter Angelina has turned 11 years old today. What passed thru my mind was everything that we passed since the day she was diagnosed with autism. I thought to myself "Why me? and Why this happened if I did nothing wrong in this world to have this brought on my child? Now I learned throughout the years that this is not a cure or a disease; things happen for a reason and these are challenges that we have to go thru life to make us strong mothers.
Angelina from being in anti-depressant medicines when she was little; not she is for 3 years now off them and is completely Gluten-Free. I stick to this and think it has made improvements in my daughters way of life. I am not going to say that everything is 100 percent better, but I am happy for her to talk more and to write words and to draw things that she sees in her iPad.
I have entered Google so many times to make sure what things don't contain wheat; you will be amazed how many things contain wheat or factories of companies have them around the foods we buy. I trust Wegman's and for me that is the only store that I can honestly say I know if its Gluten-free then it is.
Nothing prepared us as parents to have a child with autism just as life didn't prepare me for this. You just have to learn how to be strong and get the resources for your child before years pass and things get more complicated in their growth. The emotional part will never pass; if you would to tell me now something about my daughter autism; I will probably have tears in my eyes.

I had so much support from my parents and thank them every day for their support in dealing with my daughter all these years.

I am reaching out to parents with ASD children (autism); to see what other biomedical things they do or foods to stay away from. This is an ongoing thing and for me as a parent if I have to turn to my phone and see web conferences (which I have seen TED conferences on autism) I would do everything to see how I can understand my child better.

People think because a child speaks that they don't have nothing and that autism would never happen; all I can say is evaluate when they are little. Now you can since they are 6 months old and autism is nothing wrong or bad or a disease. It just means they are special in their own way.

 

Updates, probiotics and info on gluten on lipsticks...

 

It has been a long time since I haven't posted any blogs on my daughter's progress. Angelina continues on "Gluten-Free" diet and with her Methyl B12 injections given every 2 days in her buttocks. Last week, we went with my daughter to her biomedical doctor Dr. Patrick Elliott in Philadelphia. I was so glad to hear from him that he has seen so much progress from my daughter and he asked me several questions (kind of a test but knowledge check in his part), it came out that my daughter's autism has reduced significantly. I know there is no cure for autism, which I am aware of and this is not a disease in no way or shape.

 

What the doctor did "ADD" for her to take was VSL #3 Probiotic vitamins (that have to be refrigerated all the time), which are natural and gluten-free. Of course she continues with her Methyl B12 injections every 2 days, before it was every 3 days but now he wanted to increase the intake.

 

 

My daughter is not celiac in any way, but has extreme gluten sensitivity when she consumes gluten in any way. We all learned it here the good and bad way and even her school is aware of it. What I love about the schools are that if you do make them aware of their allergy to gluten, they can provide gluten-free lunch (you do have to provide a doctor's note when you do this).

 

There are a lot of gluten-free products everywhere now which make life easier for me and everyone who is allergic or celiac. When we go outside I am not that worried if it will be uncomfortable to hide things from her. I do wish a lot of other places do include gluten-free food, I guess it is still a work in progress throughout the years.

 

I am not going to lie, until now I still read labels and have my bookmarks from websites to help me. What I did actually discover from my neighbor is that there are a lot of lipstick products that contain "Gluten" and that was shocking because it adds more to my list now.

 

http://celiacdisease.about.com/od/GlutenFreePersonalCareProducts/fl/Gluten-Free-Makeup-Brands.htm

 

I have included above a website on information on gluten-free lipsticks.

 

I also am including below a website that talks about Probiotics as well.

 

http://www.autism-help.org/intervention-biomedical-probiotic.htm

 

This week I will be blogging more. I know that everything that I am doing with my daughter, there is no evidence that it helps her autism but so far it has helped me as a parent and that I am happy and glad so I just go for it and continue. 

Benefits in going to a Chiropractic for a special needs child or in general

Why should my child visit a Chiropractic?

      Many people wonder why an autistic child should visit a chiropractic doctor? I direct the focus on an autistic child because in their childhood years, they are not able to explain to mom or dad if they have a back pain, neck pain or any type of discomfort in their body. That is why it is beneficial to visit a chiropractic because they are the professional ones that can manipulate and make adjustments to any type of person or condition. 

      I read in the internet and found a website on a chiropractic who works in Canada and made this blog on why children with special needs should visit them, this is what Dr. Caldwell-Chu wrote:

      The importance of chiropractic care is essential to children with disabilities. These kids often have hypotonia (low muscle tone), poor posture, decreased body awareness and as a result have more pronounced musculoskeletal problems such as restrictions on movement and stiff joints. Furthermore autistic kids often have sensory stimulus deficits, either hypo (too little) or hyper (too much) sensitive. Receiving the proper chiropractic adjustments can be like hitting the information reset button on the nervous system. Either calming or turning up the nervous system when the body requires.

    Children with developmental disorders can benefit from chiropractic treatment focused to improve joint mobility, gross motor training, core muscle strengthening, vestibular (balance) exercise and sensory stimulation. However, chiropractic care is only part of the treatment puzzle. Other avenues of care including biochemical, nutritional, cognitive and emotional components should be addressed to offer the best possible outcome for the patient.

     My daughter Angelina used to go to the chiropractic before, but I stopped taking her because that doctor was a person "not to have patience with kids with autism". I am happy "now" to have found a chiropractic doctor who is very patient with my daughter and who also has this new machine that actually scans your body (in sections), which lets him know which part of the body needs adjustment. Love it!! Angelina showed him where in her neck and lower back, but it was great that the machine gave him a second confirmation that "she needed an adjustment really bad". Lol Angelina left the office so happy and every time her neck hurts, she lets me know that she wants to go the "the doctor for neck". I get so excited every time she talks or expresses anything that she would never do before. 

Anyways you guys... Good night and hope you found this post interesting to read!! 

Which picture makes me happy to see now ?

     Even though my daughter might not like drinking almond milk. She would have to drink it one way or another, in a pinching your nose way. The first days were bad because she stood her ground and would not want to drink it at all and ask for white milk. OMG! this girl is smart, but mommy is smarter. The days pass and now she is drinking it faster with less complain, it has been less than a month with casein free milk. Angelina started with gluten free food first then after I did casein free milk. 

     The only thing that I like in all this is that, she loves to eat corn and loves apples or bananas. Her eating habits have changed so much, that it has changed her completely in such little time. Her hyperactivity is down a little and her crying for no reason episodes are gone. She specifies more now to me or her at home therapist (ABA Therapy), even one of her therapist told me that she never believed in alternative medicine, but now yes. I am very glad that Angelina is progressing as the days go by, I see it as baby steps "little by little" with lots of patience and faith. 

      I received Angelina's blood test results, but am really shocked in what I have seen. More and more I know in my heart that I made the right decision is doing this for her. There is still blood work that is pending and not in yet, but I have a doctors appointment on August 20th and I will find out everything. Every day that goes by I get amazed how my daughter is acting and progressing, very confident it will get better as the months pass by.